Visible to the public Governance for Big Data - October 2021Conflict Detection Enabled

Submitted by Serge Egelman on Fri, 10/15/2021 - 1:40pm

PI(s), Co-PI(s), Researchers:

  • Serge Egelman (ICSI)
  • Alisa Frik (ICSI)
  • Julia Bernd (ICSI)

HARD PROBLEM(S) ADDRESSED
Human Behavior, Policy-Governed Secure Collaboration

PUBLICATIONS

  • Nothing to report this quarter

KEY HIGHLIGHTS

  • We are designing an study (in collaboration with colleagues at Aalto University in Finland) to examine healthcare professionals' views of and privacy expectations about health apps.

    Our research questions include how these views and expectations on collection of health data by consumer health apps are related to policies and governance structures for health data in medical settings. We therefore plan to interview healthcare professionals in several countries (the U.S., Finland, Sweden, Sri Lanka, and Singapore) that are quite different in terms of legal and ethical protections for medical data, the degree of centralization and control in the systems where patients' medical data resides, and the availability of government-sponsored health self-management platforms and apps.

    During this reporting period, we developed the study design and submitted it for ethics review by Aalto University.

  • We are continuing our analysis (with colleagues at University of Bristol) - mentioned in our July report - of how developers of mobile health apps approach privacy for those apps, wrapping up our analysis of StackOverflow posts, examining other textual sources, and turning to designing a human subjects study with members of health app product teams.

  • We are designing a vignette-style survey study to analyze users' privacy expectations about consumer health apps and what those expectations are based on, comparing across different types of apps that users may perceive as being more and less likely to be constrained by laws that regulate collection and sharing of health data. (For example, telemedicine apps vs. workout trackers vs. dating apps for people with certain medical conditions.)

COMMUNITY ENGAGEMENTS

  • Nothing to report this quarter.

EDUCATIONAL ADVANCES:

  • Nothing to report this quarter.
Groups: