Visible to the public Governance for Big Data - April 2022Conflict Detection Enabled

Submitted by Serge Egelman on Fri, 04/15/2022 - 1:25pm

PI(s), Co-PI(s), Researchers:

  • Serge Egelman (ICSI)
  • Julia Bernd (ICSI)

HARD PROBLEM(S) ADDRESSED
Human Behavior, Policy-Governed Secure Collaboration

PUBLICATIONS

  • Nothing to report this quarter

KEY HIGHLIGHTS

  • We are continuing to recruit and interview participants for our study examining healthcare professionals' views of and expectations about health apps, relative to policies and governance structures for medical data in the U.S., Finland, Singapore, Sri Lanka, and Sweden. (Details in previous reports; collaboration with Aalto University in Finland.)

  • We have designed a survey study to examine the relationship between U.S. consumers' expectations about how different types of apps will handle user data, and their assumptions about sector-specific laws regulating handling of health data.

    • Users will be presented with a randomized app description, varying from clearly medical apps such as telemedicine to clearly non-medical apps such as flashlights, as well as potentially less clear examples such as step counters. We will ask questions about what types of data they think will be collected and how they think it will be handled, and whether they think the app and data are relevant to health or medicine. In addition, we ask whether participants think the expected data handling practices are allowed by (1) laws and (2) mobile app platform rules; whether they think they should be allowed; and whether participants are aware of laws and app platform rules specific to health or medical data.

    • The goal is (in part) to examine users' expectations and preferences around who is responsible and who should be responsible for regulating data collection and handling, and whether users have different expectations and preferences about regulation of health vs. other types of data.

    • We have submitted the study plan to ICSI's Human Research Protections Committee for an IRB exemption determination.

COMMUNITY ENGAGEMENTS

  • Nothing to report this quarter.

EDUCATIONAL ADVANCES:

  • Nothing to report this quarter.
Groups: